Our little guy is growing so well. He is up to 8.12 ounces! He is eating 5 ounces every three to four hours and is filling out quite well. He actually has chubby cheeks. Two weeks ago we went to the physical therapist and she said that he has no known delays and I started to cry. It was so awesome to hear that. The therapist said she couldn't even make up a reason to see him again as bad as she wanted to. She worked with him the hospital every day before we came home. We do his exercises everyday but when you see him on a daily basis it is hard to see them working. The Early On program is supposed to start coming really soon. We have had some set backs in getting this started since we moved. We sold our house during this whole experience and moved to Lansing with my mother. There is a whole new team of therapists here in Lansing than there would of been in Holt. So basically we have to start all over. We have had a visiting nurse coming the last few months who was so helpful. She would weigh him and check out his heart every week. It has been really convenient and helpful to be able to see his growth and to be able to ask questions. Last week was his last appointment with the visiting nurse. It is so exciting graduating from one thing to the next but also sad because you get so used to the people. Last Tuesday Jude was seen in Ann Arbor by a Pediatric Ophthalmologist and passed his test with flying colors. We have had so many appointments with so many different specialists it is hard to keep track but Jude is doing awesome!!
Our next steps are just to get him caught up on weight and to get his therapies going. We have a few appointments a month with his pediatrician and a few follow up appointments for his heart, hearing and vision.
Jude is such a sweet little boy and so loved. We all adore him and are so greatful for his progress.
